The Connecticut
CFIDS & FM Association, Inc.
P.O. Box 3010 Milford, CT 06460
InfoLine: (800) 952-2037

Listed
below are several areas where we could use your volunteer
support
We ask that volunteers be dependable and committed
Call our InfoLine to see how you can help (800) 952-2037
(Public
Awareness)
Arrange for public service announcements on CPTV,
Community Access TV and other state TV stations. Write
and submit articles for printing in local and state news
papers. Post brochures and pamphlets in public places.
(Medical Provider Education and Awareness)
Go to Connecticut Medical Society and attempt to educate
doctors and let them know there is a market for good
treatment for CFIDS / FM and Orthostatic Intolerance.
Speak at medical schools and hospitals. Work closely with
The CFIDS Association Of America on their primary care
provider education project.
(News Media and Political Awareness)
Contact and develop relationships with persons from the
news media including people such as Tom Monahan from
channel 30, and Johnathan Harris. We also need people
from the political district of Rosa DeLauro or people
with experience working with state or national
representatives.
(Personal Thank You Letters)
When the association has positive meetings with state
agencies, public officials, or the news media. We would
like to have a group of people that are willing to write
personal thank you letters to these people. We would also
like to have one person organize and coordinate these
efforts with input from the Board of Directors.
(Support Groups)
Renew our yearly membership to CSN and FM NETWORK for
Support Groups. Stay in regular contact with all state
support groups. Ask them for information on any events
they might have scheduled and keep them informed of the
activities of our state association. Persuade their
members to join our Association.
(The Network)
Help us with publishing our quarterly newsletter, the
Network. This person should have experience with desktop
publishing software. Write articles for the Network and
our e-mail newsletter. Solicit advertising for our web
site and the Network (according to preset ground rules
and with approval on an individual basis by the Board of
Directors).
(Conferences)
Volunteer your time to help out at events such as our
conferences. Speak at conferences. Help organize
conferences. Possibly do lectures at other medical
conferences. Write and send out fliers for conferences.
(Generate Funding and Corporate Networking)
Yankee Magazine, Pfizer, and possibly contact other drug
companies with approval of the Board of Directors.
Arrange for free printing of materials by CL&P.
Explore the possibility of other corporate donations or
funding.
(Professional Liaison)
Work with other regional, state and national groups to
organize a yearly gathering of representatives and
develop a closer relationship with these groups. Network
with government officials, Health Department., Department
of Disability for the State of Connecticut, The CFIDS
Association of America, etc. Interface with other
non-profit groups i.e. Women's Disability Network
(Executive Director)
We need a person with this title to earn funding from The
Community Health Charities and other charitable
originations. This person should have previous
grant writing experience. We would like to find a
volunteer, but this may become a part time paid position.
We would expect a person in this position to be
professional, experienced and very committed to growing
the association.
(Association Membership)
Determine how to generate more members and follow up on
current membership. Help with mailings and calling people
to promote membership.
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author, quoted individual or person posting to this web
sites message board are strictly his or her own. Some of
the information contained herein is intended to help
persons with CFIDS & FM make informed decisions about
their health. However, The Connecticut CFIDS & FM
Association, Inc. and the creator of this web site do not
dispense medical advice or endorse any specific medical
hypothesis or product and assume no responsibility for
any medical treatment or other activity undertaken by
visitors to this web site. For medical advice please
consult your healthcare provider. Furthermore this web
site contains numerous links to third party Web Sites and
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Association, Inc. and the creator of this web site do not
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or products and services offered by advertisers. This
information is provided as a service and not as a
recommendation.
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