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Our Activities:
Publishing a
quarterly newsletter, the Network, which provides
local and national CFIDS/FM information and
support.
Operating a
CFIDS/FM Help and Information telephone hotline.
Responding to
thousands of requests for information and
referrals from people in Connecticut and
elsewhere.
Funding national
medical research.
Providing
statewide speaker events on topics of special
interest to the CFIDS/FM patient and medical
provider community.
Communicating with
state congressional and legislative
representatives concerning CFIDS/FM issues.
Facilitating
historic Connecticut legislation directing the
Public Health Department to disseminate CFIDS/FM
information to physicians and the general public.
Supplying CFIDS/FM
support group leaders around the state with
educational materials, training, and publicity
about meetings.
Sharing CFIDS/FM
information with employers and community groups
through invited appearances.
Our History:
The Connecticut
CFIDS & FM Association Inc. was incorporated
in 1992.
We have helped
pass historic legislation through the Connecticut
Health Department. We have also encouraged
several Connecticut Governors to proclaim May
12th CFIDS awareness day.
We publish an
acclaimed quarterly newsletter called The
Network. Articles from our newsletter have been
republished throughout the country.
We also have
hosted a first of its kind children's conference.
our association has hosted dozens of speaker
conferences. Some of our renowned speakers have
included Dr. Peter Rowe, Dr. David Bell, Dr. I.
Jon Russell, Dr. Nancy Klimas and a host of other
well respected practitioners and researchers.
We have provided
information, assistance and guidance to both the
Chronic Fatigue and Fibromyalgia communities. Our
association has also run grand rounds seminars on
various topics including Orthostatic Intolerance.
We are proud of
all we have accomplished. We plan on continuing
our efforts for as long as we are needed. We
continue our fight until there is a cure.
Materials available from
the CT CFIDS/FM Association:
(A donation of $3.00 for
each item below, is requested to offset our costs)
Social Security
Disability Resource Packet, which explains the
benefits application process, provides legal
referrals and lists other publications which will
assist patients applying for benefits.
Children's
Information Packet, which assists parents,
physicians, and school personnel in understanding
the special needs of children with CFIDS/FM.
Fibromyalgia
Packet, which contains information about FMS and
its relationship to CFIDS, a recommended reading
list, referrals, and an FMS primer.
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Disclaimer: The ideas expressed by each
author, quoted individual or person posting to this web
sites message board are strictly his or her own. Some of
the information contained herein is intended to help
persons with CFIDS & FM make informed decisions about
their health. However, The Connecticut CFIDS & FM
Association, Inc. and the creator of this web site do not
dispense medical advice or endorse any specific medical
hypothesis or product and assume no responsibility for
any medical treatment or other activity undertaken by
visitors to this web site. For medical advice please
consult your healthcare provider. Furthermore this web
site contains numerous links to third party Web Sites and
paid advertisements. The Connecticut CFIDS & FM
Association, Inc. and the creator of this web site do not
control or endorse the content of third party Web Sites
or products and services offered by advertisers. This
information is provided as a service and not as a
recommendation.
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